“For centuries, community builders, social justice engineers and freedom fighters–most of whom are multiply marginalized–have been doing exhausting and traumatizing life-changing & life-saving work with and for no money; with no sleep, health or mental health care; and with no institutional support. Our work is done for advancement not accolades; for freedom, not financing; for liberation, not to be lauded. Our work is not trackable, billable, fungible, settlement negotiable. Our work is invaluable. Our work is deeply rooted in love. I honor you.”
- Talila A. Lewis, Fighting for Freedom & the Expense of Erasure
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As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
I’ve won my benefit claim for 2 years, please see my chat post for more info.
I really didn’t have a good day today so reading that you finally got something out of the British government really made my day a lot better. I’m so fucking happy for you
What happened? Do you want to talk about it?
Just a shit day, nothing really happened, but seeing that someone else finally got a silver lining made me feel better
I am so sick of the judgment from people who have no idea what it’s like being ill. Latest one: I mentioned on lemmy that I wanted to learn to draw but have been feeling to tired and brain foggy to start. Some judgmental twat told me to stop letting myself rot. Like, these idiots can’t even imagine what it’s like living like this. I’m dealing with cancer, it’s treatment, the after effects of a stroke and other issues, all while dosed up to the eyeballs on prescription meds with a lot of side effects, but oh how lazy I am letting myself rot and not taking up a new hobby throughout all of this.
There’s a line between trying to be motivating and being condescending and too often people cross it.
That’s awful. The “bootstraps” mentality runs deep. I’m sorry.
There’s an ICD code for failing an exam, there’s also a ICD code for not wanting to go to work/school.
Ayo can someone please explain to me why mass forced vaccination is a tool of the bourgeoisie, I don’t want to brigade or dog pile the user talking about that, it ain’t about that shit, I just know there are well read quality posters here and I’m too close to the topic to discuss it without getting angry, having a shit immune system, that and it being in a measles thread rubs me the wrong way https://hexbear.net/comment/6980102
I am an immunocompromised person living in America and a forced vaccination program under this current administration sounds like my worst nightmare. You have plenty of very well-spoken responses in that thread from both Keld and queermunist by now, but…
please explain to me why mass forced vaccination is a tool of the bourgeoisie
We can (must) be dialectical about this: what do you think the current ruling class in America would do with the power to forcibly “vaccinate” people?
At worst I can imagine they microchip you and give you a worse version of any vaccine so you need to subscribe to their program and every two months you need to get it again and then they sell your data to everyone, also you need their vaccine app on your phone, also after a while there will be a scandal were they weren’t even vaccinating you and just giving you saline water shots, in all honestly I wrote that yesterday when i was tired
Coming to terms with the fact that 99% of the things I ramble about are embarrassing as hell. The combination of having bad social skills due to Autism and having no filter or restraint due to ADHD is wild.
Oof. I’ve completely burned some bridges because I’ve done this, but that probably isn’t the best most healthiest option. I do like you and your posts on here, at least!
Nobody knows what’s healthy anyway so I don’t really care anymore
Nah its cool. I like you and my opinion is the only one that matters.
An annoying thing about my volunteering as… uhhh… I dont really know what the title would be in English, “patient advocate”? Anyway an annoying thing about volunteering as that is that my instructions on how to treat people i get from doctors (Not the curriculum mind you, but from work and passive contact with doctors) and the instructions I get on how people should be treated by patient advocacy experts are diametrically opposed and it is making me cynical.
They really should be aligned almost perfectly. If they’re this opposed, it only proves that there’s something seriously wrong with medical care in general
They should. But incentives ruin it on the healthcare provider side. Even if you want to do well, you have limited time for each patient and you’re rewarded for getting people through the system.
im so burnt out, so much bad stuff is happening at once and instead of that being reason for me to try to relax i just have too much stuff to do now
tourette’s discourse
all I’m gonna say is there is one malicious party here and it is the BBC which decided to censor stuff about Palestine but not cut out the Disability-Induced Public Humiliation Moment
yea that was my opinion on it too
the discourse is really not great, just people straight up saying disabled people shouldn’t be able to be visible in polite society, or people being racist, eugh
And you are correct about the BBC being the malicious party.
Oh man, you’ve seen it too? Some people just really shouldn’t talk about a condition they don’t understand.
I’ve never posted here before, so I’m hoping I’m not breaking any rules or acting in poor etiquette. I’m epileptic and some months back I was hospitalized with severe seizures, ever since then my memory has been utterly shit. It’s embarrassing, forgetting basic things at work and around the house. More importantly, I don’t feel totally present in my life now. My sense of time, from months to days, is screwed up. Seriously, sitting here, I can’t tell you just what month I was hospitalized. A couple months ago or more than half a year ago? I’ve never had such bad seizures. I feel like it is so taxing on my wife who already has so much to deal with.
I’m not really sure why I’m typing this except that I guess I could use the support or some perspective. I feel such guilt and helplessness lately. My wife, family, and friends deserve better than me being so screwy and needy. But I know if the roles were reversed I’d do anything for them. I just hate feeling so helpless and stupid.
you’re more than welcome here!
and yea those are common feelings with anyone who’s disabled i think, feeling like a burden. i don’t really have insight i just want you to know that you are loved
Thank you, that’s very kind. I am definitely loved, I know that for sure.
You are welcome here, anytime you’d like to post <3
I feel for your struggle, friend, and I can only try to imagine how confusing your time perception has to be. Have your doctors told you if there’s a chance it could normalize again?
I also want to let you know that you are neither stupid nor a burden. You have a disability that impacts you severely. And that feeling of helplessness is one many of us in this community share. While we can’t make the issues go away, we can listen and give each other the space to talk about it and not feel so alone with our problems.
Thank you for sharing your story, and we’re happy to have you
I hate being lectured on how accommodations are a sign of weakness and too much for poor porky to provide, yet we spent the last 50 years bending over backwards for porky and shoving free money in his face and all of us doing everything for him. Still, none of them have been in the hiring mood since 2008 and see every applicant as a burden they need to avoid rather than just a part of doing business.
I couldn’t agree more, this is exactly what it’s like.
With the recent incident of Tourettes being in people’s circles of talking, while IDK if the guy who did say the N-word apologized, but let’s say he did and has no actual hate.
It’s kind of disgusting how everyone is spreading around what would be a very embarrassing moment for someone as a smug gotcha “he said the funny word. Suck it, moralists!” like he doesn’t want to hide behind Tourettes, a tic put him in an embarrassing situation.
You’re literally acting like a south park joke.
I wish I could show you, when you’re lonely or in darkness, the astonishing light of your own being. You are loved, you matter, and we’re grateful you’re here with us.
When I find myself in times of trouble / un_mask_me comes to me / speaking words of widom / You are loved. / And in my hour of darkness / they are standing right in front of me / speaking words of wisdom / You are loved.
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I just saw my campus on the news…
For conditions being so bad in the labs they’re being linked to cancer.
Holy shit
5 of the lab instructors in a period of 10 years have apparently gotten cancer before the age of 35 So not great!
…how do you have this happen and not investigate this from the university’s side? Like, hello, you should care the most about the workplace being safe???
How often do you have to go to this lab area?
Used to be every day! I haven’t been down there for a couple of months, but we’re looking at having to go there at least twice a week next month, so that sucks.
…how do you have this happen and not investigate this from the university’s side? Like, hello, you should care the most about the workplace being safe???
The faculty were informed by the environmental medicine department at the local hospital in 2019.
Sounds like a class action lawsuit waiting to happen.
Okay, so they absolutely don’t give a shit. Maybe a lawsuit will get them off their asses, but for that, you’d need to get a bunch of people on board.
we’re looking at having to go there at least twice a week next month
Did the report explain what was so hazardous? Maybe you can wear additional protection? Or simply say you refuse to go there for health reasons?
There’s been no formal investigation, but the assumption is that it’s formaldehyde exposure that’s the main culprit, which makes sense given that the entire hallway near the labs smells of the stuff.
I think I’d need to wear a respirator to be totally safe, which I don’t think is realistic. I’m gonna have to send a mail to my classmates and my instructor
Yeah, as useful as formaldehyde may be for conservation, it is also pretty fucking dangerous for the living. Has the report mentioned any type of cancer in particular?
You could go for masks (with your classmates and instructor together) but otherwise, maybe just try to get the class to some other area.
my outreach person said that my appeal form was really well written yippee
Yipeeh! Proud of you
