Lifelong migraineur, chronic for the last eight years. Last week, I had an aura come on hard and fast then lost about two minutes of time. Very unsettling to say the least, but thankfully my partner was there to witness it.

My neuro set me up with an awake/drowsy EEG at the end of the month. They put “behavioral arrest epileptic seizure” on the order. Depending on how it goes, I may need to go to an epilepsy monitoring unit for further testing.

So for those who have both migraine and epilepsy, especially if migraine was diagnosed first, what was it like getting diagnosed?

  • ytsedude@lemmy.world
    link
    fedilink
    English
    arrow-up
    3
    ·
    16 days ago

    Never had epilepsy with a migraine (so far, at least), but that sounds scary. Sorry you’re dealing with that. Migraines are bad enough on their own. Hope you get some answers soon!

    • quercus@slrpnk.netOP
      link
      fedilink
      English
      arrow-up
      3
      ·
      16 days ago

      Thank you for the kind words. I learned a couple days ago that migraine auras build up and focal aware seizures (aka seizure auras) start abruptly. I thought they were all just part of having migraines, so I’ve been writing them off as “migraine glitches” for nearly two decades smh.