May you find time this week to heal, to feel, to breathe, and to rest.
Friendly reminder to please use
spoiler tags and content warnings [cw]
for sensitive content that falls under Hexbear’s Code of Conduct.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
there is no such thing as “not disabled enough” to use a disability aid
if a cane/wheelchair/whatever will help you then you can just get one, acab includes the cop in your head
Legitimately sucks a lot at work. There’s a lot of people who would absolutely be safer if we assisted them but they don’t want us to. I understand wanting your autonomy etc but at least one of these people was told by a doctor we need to help them and they still refuse. Obviously your choice but I don’t mind helping and don’t want to see you get hurt.
I avoided having to do a presentation in front of the class, but the instructor singled me out and said “He doesn’t have to do the presentation because he has [mental illness]”
AaaaaaaaaaaaaaaaaaaaaaaaaaaI might cry.
Why would your professor say that out loud in class? That’s so not okay, I’m so sorry sweetie
I don’t know. It was so humiliating and embarassing. It’s not evem that i mind people knowing, but i want to be the one to tell people you know?
I get it, and I fully agree with you. If anybody gets to share this, it’s you.
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I don’t want to make a deal out of it, it’s already humiliating enoigh.
“have disabled people considered the first solution anyone would think of? and other unhelpful tips”
aw shit what if we tried not being disabled
CW ableism
spoiler
Today on reddit someone said “After a nuclear war you and the rest of the survivors are running out of food due to a low yield harvest. One person suggests exile all disabled people to the cold wastes to die, another suggests abortion of current pregnant mothers. Other choices are a lottery to decide who dies, or do nothing. What would you rather do?”
They overwhelmingly voted to exile all the disabled people to die.
While I absolutely share your frustration and am glad you shared this post, I wanted to ask you to put a CW for ableism in your post as this is some very dark stuff and it should be marked accordingly.
Edit: Thank you!
Reddit is fuckin trash-style garbage. additionally if you believed what they say about reality then ron paul would have been the president. Its also just riddled with bots these days, i’ll read through comments and be upset by the comprehension on display until i realize there is no comprehension at all, just bots speaking past each other. Long story short reddit is full of dorks, robo-dweebs, and fascists.
I mean obviously. It is a hypothetical set up explicitly to show an assumed relative worthlessness of the disabled and makes the assumption that we do not contribute.
Name a more iconic duo than reddit and bringing back 19th and 20th century views on the marginalised. The hypothetical is literally framed around useless eaters.
Some of the replies are saying this is a reddit thing but I’m pretty sure most people would do the same. This is the dominant view in our society.
CW: discussion of ableist beliefs
Also bc of some very old belief that only “able-bodied” people can survive in harsh conditions. Like, that during an apocalyptic scenario straight out of Hollywood, people who are disabled would just die first, because they’re sick. It’s a very pervasive belief and it makes it sound like each disability is the same.
They always do. Disabled are always the first to go. It happened under the nazis. Its happening in kanada with MAID.
Exile all the Redditors
its sad people collectively just decided to ignore that covid is still happening
I have seen two masks since summer break, one on an asian foreign student and one on a manual worker doing some kind of road work, and that is literally it. I have been on the lung department of a hospital, no masks.
I’m not seeing masks either. One person on a train a while back, but other than that?
I’ve also noticed that the prices for masks have gone up again. Not only are they harder to find, they’re also way more expensive than a year ago (at least where I live)
Same here. I have said it before, but I genuinely would not know where to buy them in a store at this point. They don’t have them at the pharmacy, they don’t have them at the little health shops that used to have them for ludicrous money during the period where people took covid seriously, they don’t have them in groceries, they don’t have them in uhhh I don’t know what the english word for it is but those stores where they sell like tools, cleaning products, wires and other random stuff for the house. Nothing.
respirators my beloved
most of them dont have exhaust filtration but like, take what ya can get
I recently had to ask a gynecologist to wash their hands, AND put gloves and a mask on. I couldn’t believe they didn’t do that automatically.
Should I complain to the hospital? Would there be a point even if the person talking to me cares because in the end the doctor is the one who makes the choice to ignore things? There’s so many treatment resistant strains infecting hospital surfaces due to the staffing crisis in healthcare. Maybe I’m too nervous, but I feel I’m at enough risk of sickness just by walking in to be treated.
I don’t know where you live, and therefore have no knowledge of the mechanisms of complaint. But where I’m from you got as much as you are likely going to get by virtue of the doctor washing their hands after you said to. Complaints about “minor” stuff like handwashing can trigger, if enough come in, department wide sanitation courses. But those are pretty infrequent.
I’m from the US.
I am not, so sadly I can be of little help with the inner workings of the US healthcare system. I think it’s significantly easier to get a doctor in trouble in the US, but that is simply something I have heard and have no knowledge of.
Been struggling to get my doctor to get me a prescription for a vaccine. Probably going to have to doctor shop unfortunately
I got good news from a doctor’s appointment for a change! They can be nice, understanding, and take you seriously (apparently).
I once mentioned I had a hairloss problem. So he asked me a few questions concerning the symptoms I’m having and even asked if I felt stressed out. After giving him the full list of things that stress me out, he went over the blood work I had done and arrived at the conclusion that no, I’m not sick, but too stressed for my skin to function properly. I have a few prescriptions I can use now (without cortisol!) to treat the scalp itching as well as the hair loss, and if I have any more problems, he said I can check in any time. It’s apparently a very common condition with a lot of stress, and he also said, and I quote “It’s not your fault that you’re stressed out by everything that’s going on in your life.”
Glad to hear you got some answers and it’s not a terrible diagnosis. Hope you can get your stress levels down though.
Amazed to hear a doctor took someone seriously too. That must be a first for medical science. You’ll be in the Guinness book of records.
That’s the thing, he told me plain and simple that no matter what I do, this will come back once I’m stressed again, so it’ll be a constant companion from now on. That isn’t his fault, but he gave me enough stuff to take care of it so i don’t lose any more hair over it lol. But reducing the stress level will probably only come about once I have a job and get rid of my chronic diseases, as they are the main facilitators of the skin condition.
Tbh I think it’s just a matter of deciding to give a shit. He was completely stressed out too and he still made the time to chat with me about what stresses me out. I think he just got up and decided not to be a prick to his patients, which is rare.
I think he just got up and decided not to be a prick to his patients, which is rare.
Half of my doctor visits are ones where I’m treated completely kindly. It’s not that rare for me. (Hmm, this makes me think there’s people in similar conditions as me who are treated much better by their doctors.) If your primary doctor treats you poorly, maybe you could try switching to a new one. Y’know, since they’re the ones who can take up a lot of your doctor visits.
Congrats on not having a worse diagnosis. Compared to some other things I love that you’re much more okay! I really hope you can get rid of at least one or more chronic issues, and can make them all at least a little better.
In the meanwhile, please give yourself grace and decent rest. I have stress issues too and 10 seconds more of self-compassion each day is progress. I try to remember: Doing my best looks different each day.
My primary doc is really nice, but I rarely need to see them as my chronic conditions always need a specialist (diabetes as well as celiac’s disease). My endo is pretty decent and competent, however, she is legally forced to ask me certain things that I don’t want (a pump and CGM), but that’s hardly her fault. My other permanent doctors are either competent or competent and nice, and at this point I’d rather have a competent doctor than a nice one. I’m just always happy when I meet a new doc and they’re nice on top of everything else.
My chronic issues will never go away, so there’s that. But the unemployment could be fixed eventually. I will resign myself to unemployment for the foreseeable future tho. And I’m taking a lot of rest (and light exercise) but what can I say, it’s stressful being alive these days, so no matter how chill I am, I can hardly relax properly.
Thank you for your kind words sweetie, I appreciate it
Sorry to hear that.
The human body is awful, giving us extra problems when we already have problems instead of making things easier.
Thank you sweetie. I honestly think it’s just another way of the body saying “I’ve had enough, please take a break.” And you know, I actually agree for once.
Unfortunately the system humans have created doesn’t allow anyone to take a real break.
Very true
Back when I thought I just had depression and anxiety I thought maybe someday I’d be “better”, or at least better enough that I’d be able to do more normal stuff.
Now that I know that those are just side effects and I’m dealing with BPD, cptsd, and autism there’s not really any hope anymore.
literally me if you swap out the BPD for DID. yea i have those feelings really often too, really frustrated that i can’t really even leave the house
for me what helped the most was radical acceptance that it’s actually okay to not be able to do normal stuff and just relax all day, but it took a very very long time to get there
Those are some heavy things to manage and work through, especially day-to-day. I hope you can still experience some of the things you want in the future, even if they come about a bit differently than you’d imagined.
Not BPD/cpstd (well maybe on that last one) but yea same.
Worst haul at the food bank yet. Since i didnt take the milk, the cream and the mayonaise i got:
Frozen bread rolls, pears (5), a baguette and a bag of chopped lettuce. I shouldn’t complain since it’s free food and the people who gather amd distribute this food are doing me a huge kindness, but this is not going to sustain me for a week.Edit: correction: i got a bag of chopped lettuce and a bag of unchopped lettuce. I also got a bell pepper
Before mutual aid, when I had to use the food bank, a typical package was just 90% drinks and things to go with the drinks. It would be a box of teabags, a jar of coffee, a bottle of milk, a bag of sugar, some cookies and then either a small bag of pasta or a mini loaf of bread as the actual food. And then we have to listen to society tell us how easy it is, how much help there is available.
Oof, that’s shit. I will say that while the quality varies, this is by far the worst haul I’ve had.
There’s been a lot of stuff in the news lately about how food bank parcels are getting worse because they’re running out of resources and more people need them.
That would suck enormously. I’m gonna choose to hope that it’s just one shitty haul.
I was reading on the bus and fidgetting with a piece of fabric. After a little bit it turned out to be someone’s hijab i was messing with. Shoot me. That poor woman. I was basically committing assault.
oops
I saw a quote about GP receptionists on youtube today: “Their commitment to being so aggressively unhelpful is impressive.” So true, and I’d say it actually applies to the entire medical “profession”, not just receptionists.
I shuold defend my chosen profession, but really doctors deserve no grace on any issues.
If i may wax philosophical, beyond the fact that medical school does not sort for ethical concern or empathy, there is a problem with the roles of the physician. A physician is supposed to have a set of defined roles, but in many systems doing austerity they’ve had the role of medical gatekeeper added to it. Which is a huge conflict of interest. A physician is supposed to be a zealous advocate for their patient the same way a lawyer is supposed to zealously advocate for their client, but we’ve also charged doctors with worrying about costs and preventing people from accessing “too much” care, resulting in a gigantic conflict of interest and only the representative of the medical system itself are the ones who can affect their careers.
The relationship between a physician and the accountant should be antagonistic. They have opposing interests. But we have mandated that physicians both play their role of patienr advocate and also make decisions based on matters that aren’t patient wellbeing.
Sorry if I missed anyone before I made the new thread, hope everyone is doing okay today
I had my scan today. They found uterine fibroids. According to google, these can cause frequent urination and other bladder problems. It says the treatment is hormonal meds, with surgery to remove them as a last option. I don’t want hormonal meds for many reasons, I just want to go straight to the surgery, but we all know what the NHS is like. I bet if they do anything about it at all, it will be just pumping me full of drugs with terrible side effects that don’t even help.
I think this girl I used to talk to had uterine fibroids. I’m NOT a doctor and I can’t say what you need, but if you ever start having endless periods I think they took Lupron to shrink the fribroids so there’d be less bleeding during surgery. I think she was able to keep her uterus. Idk if they all eventually cause bleeding, but if so, you’re very lucky to have found them before the any bleeding.
Talk to your doctor about if this sounds right: Might as well start shrinking them now if it helps future surgery results.
Again, not a doctor, so I may be misleading you a bit. Just giving you ideas of things to ask questions about.
My periods seem to have stopped altogether. Thanks for the tips but I won’t take any more meds, especially hormonal ones.
I’m not sure if I’m relieved for you because I don’t know if that’s better or worse. You may have a whole other set of problems, but I’m happy you don’t need regular blood transfusions like that girl did. She was dizzy and tired from losing a lot of blood and still had to work. Now the words “uterine fibroids” scare me and make me fear for whoever has them. I dearly hope you’re in a more ideal situation than what she was in.
Thanks. I have no idea whether these fibroids are causing my problems or not, and I don’t know if my periods seem to have have stopped now due to my age or something else, but I can’t take more meds. I already have far too many side effects from all the meds I’m on already and hormonal meds could really harm me as I’ve had a stroke already (which was a side effect of my thyroid meds). I’m drugged up to the eyeballs and can’t take any more. I just want it cut out if it’s what’s causing my problems.
Side effects suck. You know your body and I understand not wanting to be chock full of meds.
its funny how doctors will write up a report saying “patient denies homicidal thoughts” like they can see right through me and im putting up a weak defense
patient denies being a stupid lil gayboi who can’t even do an ollie
I’m absolutely baffled at that statement. Why would the doctor think you have homicidal thoughts?
And you are not stupid, don’t forget that
homocidal thoughts towards iof soldiers.
If you see a person dressed like a doctor at my campus, that’s a trap otherwise known as a dentist student. They are literally the only ones who wear a labcoat outside of the labs. They roam the halls in packs looking like doctors. They go to lectures in labcoats, they eat in labcoats, they go to the study hall in labcoats. It totally defeats the point of labcoats! If they go somewhere they’re supposed to wear a labcoat wearing that they’ll either bring something in or carry something out!
So I’m having a hard time dealing with my anger. The choice to not fund snap is just evil, no two ways about it. This is going to be awful and i am just furious. its not like spilling into my life or directed towards innocents, but its just roiling inside me. Pure venom.
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