Wow does this resonate with me.

  • velma@sh.itjust.works
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    1 day ago

    It took almost 4 years to get a diagnosis for my particular autoimmune disease.

    I was told that I was lying about how much sex I had, asked if I was raped, told that I would have to just deal with the pain, and turned away more times than I can count. I was 16 years old.

    • Wren@lemmy.today
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      17 hours ago

      That sucks and I’m sorry.

      Twelve years for me. Andometriosis. I fixed it myself by buying a $600 IUD out of pocket (free Canadian healthcare only applies to things men have, too) and having it inserted… with only tylenol for the worst procedure in my life, of course.

      • velma@sh.itjust.works
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        17 hours ago

        Oh god, I’m sorry! Recently had my iud swapped out and only had some ibuprofen to help which it doesn’t. That shit hurts!! Solidarity <3

        • Wren@lemmy.today
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          17 hours ago

          I’m demanding something stronger for the swap or else I’m not going to do it. Fuck doctors.

          Ibuprofen does shit all.

  • Omega@piefed.blahaj.zone
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    1 day ago

    So, people didn’t believe women, in a thread about women not being believed.

    Many such cases…

    Personally I was already used to doctors not believing me before I was out as a woman. Guess it was the fact that I was autistic? Honestly, I think a lot of people treated me as lesser for being a “lost weirdo feminine weak boy.” Now I have the lovely trifecta of being a woman, being trans and being neuroatypical.

    Lying to my doctors is basically routine to me. It’s a fucking necessity. Every time I start seeing one as a potential ally to me, they find a way to remind me that they’re anything but. They’re a gatekeeper, someone who has way too much power over me, what I get or don’t get, and much closer to an enemy than an ally.

    I have massive trust issues. I can put a lot of that blame on the medical and psychiatric system.

    • velma@sh.itjust.works
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      1 day ago

      I have massive trust issues. I can put a lot of that blame on the medical and psychiatric system.

      Same. It is really difficult to get myself into doctors now even when I know I should. The level of incompetence is astonishing, from the front desk all the way to the providers themselves. I have very little trust in the medical system.

      Once had a doctor tell me that the abdominal pain I was experiencing was totally not kidney stones! They didn’t know what was wrong! So I pulled up the report from the imaging that was done and asked if the noted gallbladder stones could be doing it?

      Fuck doctors. I say this personally and not as an actual dig at any doctors here necessarily.

      • applebusch@lemmy.blahaj.zone
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        23 hours ago

        pre egg crack one time i had sex with my girlfriend and finished inside, and simultaneously got a sharp pain in the end of my penis and found i was bleeding from my urethra. it kept hurting for like a month without getting better so i went to see a urologist. the guy litetally would not listen to anything that i said, just kept saying that its probably a uti, 90% of the time its a uti. i told him about the event and he flat didnt believe me. i told him about the pain and he said it might be referred pain from somewhere else… they did a uti test and go figure it came back negative. i agreed to an examination with one of those cameras they insert and they skipped right last the part i said hurt, didnt even look at it, went straight to the bladder and said everything looked fine… like no fucking shit i keep telling you where it hurts and you wont even fucking look at it. then this fucking asshole has the gall to tell me its still probably a uti and sends me off with a prescription for antibiotics… i never filled it or went back and just waited for it to get better on its own which it thankfully did. but fuck that guy in particular.

  • prism@lemmy.blahaj.zone
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    1 day ago

    I was diagnosed as “woman” for many, many years. I was always cold, tired, easily fatigued, depressed, and got nothing but SSRIs / antipsychotics / anxiety meds / etc. prescribed, because no doctor believed anything was wrong and I was told it’s normal to need a cane to walk since I was 23.

    Then one day I had a seizure and developed widespread nerve damage in 3 months, and suddenly I was taken very seriously, got a diagnosis for a degenerative nerve condition, and put on treatment for it. Unfortunately, we found out that I can’t absorb the necessary medication orally at all, so I have to do injections of it for the rest of my life… so of course, my doctors keep taking away my prescription for the injections and putting me back on the pills that we know don’t work. I’m so tired.