cross-posted from: https://scribe.disroot.org/post/2449681

Researchers from China are to be allowed access to half a million UK GP records despite western intelligence agencies’ fears about the authoritarian regime amassing health data, the Guardian can reveal.

Preparations are under way to transfer the records to UK Biobank, a research hub that holds detailed medical information donated by 500,000 volunteers. One of the world’s largest troves of health data, the facility makes its information available to universities, scientific institutes and private companies. A Guardian analysis shows one in five successful applications for access come from China.

For the past year, health officials had been assessing whether extra safeguards were needed for patient records when added to the genomes, tissue samples and questionnaire responses held by UK Biobank. Personal details such as names and dates of birth are stripped from UK Biobank data before it is shared but experts say that in some cases individuals can still be identified.

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